Friday, 23 August 2013

October 17th

Is or should I say was my due date. Our daughter was far too eager to meet us and arrived nine weeks and one day early. She is the most beautiful and tiny little person I have ever seen and I am so blessed that she is mine and J's.

E spent six days in the NICU but was well enough to be moved to HDU. Saturday was a tough day and she was edtremely poorly but since then shenhas been thriving. She no longer needs a respirator and is breathing on her own and holding her sats.

Feeding was stopped due to her stomach issues on Saturday but she was restarted on feeds Monday morning and has built up from 2ml every two hours to 14 ml every two hours. She s a little fighter that is for sure! She also needed Phototherapy for jaundice but thankfully that was also stopped yesterday as her body is now doing what it should all by itself.

Today we are hoping to get those feeds up even more and to get her off the fluids. Removing the fluids is the next big step for her. Any good thoughts or prayers that she comes off them tonight would be appreciated.

The last nine days have been the toughest of our lives. Just sitting and watching her. Unable to just pick her up and comfort her when we want to. Trying not to touch even as the less you touch the more they rest which means the heal and grow quicker. Touching them just stimulates them and uses up the little energy that they have.

We have been able to hold her most days but only at certain times and usually for about an hour. Those precious moments bring a complete sense of calm over my whole body.  We know she is getting stronger by the day and are learning patience in a way I never knew was possible.  Although there have been many tears shed we are happy with how she is dong.

I will try and post when I can but we are spending very little awake time a home. I am going back to bed for an hour before it is time to get up for the day and make our way to the hospital for the next 12-14 hour shift with our daughter.  I f I could stay 24 hours I would but we know we have to get our rest so that we are able to look after he when she is able to come home.

18 comments:

  1. Congratulations! I hope your daughter is able to come home soon!

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  2. Your daughter is definitely a little fighter! All the best to her, you & your husband!

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  3. Congratulations on your little girl's arrival. Looking forward to her getting better and stronger every day. Xo

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    1. Thank you xx i have just realised I have not had blog updates of yours in a long time! I hope it is just a glitch somehwere and all is okay with you x

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  5. My daughter was due October 20th and was born on August 9th at 29 weeks. Today she is a healthy thriving 7-year-old! Hang in there!! NICU is hard but one day it will be a distant memory.....

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    1. Glad your daughter is thriving, i can't wait until the day it is a distant memory instead of a nightmare!

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  6. I'm just getting caught up with reading my favorite blogs (after an extended absence), and I am so sorry that I missed so much of your experience. I am so happy that you have a beautiful little fighter at the end of your long journey and, while it is SO difficult to have a baby in the NICU, know that this period will pass very soon and she will be home...running your household...in no time. Our little guy was 7 weeks early and he is now in the 85th percentile for height and 99th for weight, testing about a year above his age developmentally. Those little early birds can really surprise you. Best of luck to you and your family.

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    1. Fabulous he is doing so well! Thank you x

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  7. Congrats! Can't wait to see picks of the little lady!

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    1. Thank you x not sure I will be posting pics on here or not yet.

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  8. How are you? Thinking of you and hoping your baby is getting stronger. Sorry you had such a rough start.

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    1. Thank you x E is much stronger now and is doing well. I hope you are staying strong I think of you often and still pray you will get your miracle one day x

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  9. Congratulations! :D All the best to you and your new family

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